The Future of The Quinn Madeleine Foundation
May 16, 2023

It is with purpose that we have chosen to share this news with you on what should be Quinn’s 11th birthday…

After much reflection, we have decided to dissolve The Quinn Madeleine Foundation. The values of QMF - Awareness for Hope, Memories for Life - have guided our every move, beginning with its inception in January 2014 and continuing through today.

The pandemic offered a rare opportunity to pause and reassess. And with that assessment we realized that Quinn’s impact on the world should continue to evolve, just as she would have. Over more than nine years we have completed 42 Quinn’s List Wishes, sponsored many NTSAD Camp Snuggles, identified 32 carriers of the pathogenic mutation that causes NPA*, and granted funds to a variety of proximal organizations doing research outside of the purview of QMF. QMF has also brought together communities in the name of hope and has grieved together after the losses in the name of awareness.

Though QMF will be dissolved, we are pleased to tell you that Quinn’s impact - and that of all of the babies we have served - will continue on through the amazing work of the National Niemann-Pick Disease Foundation, Inc.. QMF’s remaining funds will go toward the following programs:

  • ASMD Research Fellow
  • Newborn Screening
  • Contribute Findings to the International Niemann-Pick Disease Registry (INPDR)

The support we have received both as a family and an organization over the past decade+ is unmatched. Quinn may have been the impetus, and QMF her tool, but our supporters have been the drivers. Please take a moment to acknowledge what you have done for countless babies and their families; we are doing the same.

So as Quinn should be getting ready to move on from elementary school, with 5th grade graduation just around the corner, we are also graduating from a well-loved, never forgotten period of our lives.

With peace, love and gratitude,
Eileen and Brett Linzer
& the QMF Team

P.S.: NNPDF has let us know that donations can continue to be made in Quinn’s memory. They can be restricted to the programs indicated above, or sent to the general fund where the wonderful staff and BOD of NNPDF will determine the best use.

*NPA is now more accurately known as Neurovisceral Acid-Sphingomyelinase Deficiency, or Neurovisceral ASMD

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Quinn Madeleine Linzer was born on May 16, 2012, the youngest of three children to Brett and Eileen Linzer
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